Support Children of Batten Disease

By: The Australian Chapter of the Batten Disease Support & Research Ass Inc

What is this appeal for?

Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood. Early symptoms of Batten disease (or NCL) usually appear in childhood when parents or doctors may notice a child begin to develop vision problems or seizures. In some cases the early signs are subtle, taking the form of personality and behaviour changes, slow learning, clumsiness or stumbling.

Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Children become totally disabled and eventually die. Batten disease is not contagious nor, at this time, preventable. To date it has always been fatal.

How will the funds be used?

To support families, carers, teachers and alike with information and programs.
To fund scientific research to find a treatment or cure.

Key areas of expenditure for funds donated:

Family support programs
Support scientific research
Provide infrastructure

Is this appeal tax deductible? Yes

Will I receive a receipt for my donation? Yes, automatically sent to you by email when approved.

There are many ways to donate - select your donation method below

Donate Online

Help to support your community by donating to a community group through our secure online donations service. Donating online ensures 100% of your donation reaches the group of your choice (less 1.228% credit card fee for Visa and Mastercard / less 1.43% card fee for AMEX). Our Community takes no commission or fee for this service.

Donate by Mail

Download a printable donation form to send through the post to:
9 Norton Avenue
KILLARNEY VALE NSW 2261

Leave a Bequest

Leave a Bequest to The Australian Chapter of the Batten Disease Support & Research Ass Inc in your will. Click here for further information.

Contact details for this appeal:
Ms Vanessa Anderson
Facilitator
Telephone: 02 43345785
Email: gvjcando@ozemail.com.au
Website: www.battens.org.au

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